Good evening all!  I wanted to share with you a story as well as some special plans for Beau's service on Sunday.  First, I want to let you know that Jennifer and Parham are doing ok.  Their strength and courage continues on even at this most difficult time in their life.  They were sad to see Beau go but they rejoice in the fact he is not suffering and his little body is whole once again.  A long time friend, Emily Rouse, came to see us at the hospital yesterday right after Beau's Christmas party.  She and her husband wake every morning to the music of a Christian radio station and normally turn it off and get up.  But, yesterday morning for some reason her husband didn't turn it off.  Emily spent her time in prayer and went back into the bed room and she heard a pastor talking about the the 23rd Psalm (this was read at Beau's baptism ceremony) so she sat down and listened.  He was talking about how a good Shepard will place the little lamb on his shoulders and carry him out of the thickets back to a safe place before he puts him down.  She said a vision came to her - a vision so clear and real that she could see every detail.  She saw Jesus carrying Beau on his shoulders (like a daddy would carry his son) and he was walking him through these troubles and when they came to the end there was the most beautiful green grass and a playground and Beau got down and ran to play.  It was so real and vivid to her.  She prayed about coming to tell us and prayed that she would see Grammy or Ma if God meant for her to tell us what she saw.  As soon as she arrived on 2 West there was Ma and Grammy.  She knew she was meant to come tell us the story.  She told Ma and I the story and then Jennifer came out of the playroom and she repeated it to her.  Jennifer was so glad she came and it helped her to know that Jesus was carrying him through this time and what Beau would see and do when they arrived at the end.  Little did we know what the remainder of the day would hold but God knew and he sent Emily to give Jennifer this message so Jennifer would know that even as she heard the story Jesus was carrying Beau.  She would also know that when the journey was over Beau would be at the most beautiful playground and he would be playing and having fun.  We hadn't see Emily in the longest time.  Why did God choose her?  Only God knows that.  Emily has prayed for Beau from day one. She told us she felt like she had helped raised Beau.  She told the story so eloquently and with such passion and it helped Jennifer and I think after the next few days are over and Jennifer has time to reflect back she will realize God had a plan that day.  Every moment from the time the clock went off in Emily's bedroom that morning until she told the story to Jennifer was planned by God.  He knew what that day held and he knew Jennifer needed to hear this message.  Our God is an awesome God!!   Fireman Jake (Beau's hero) was able to make arrangements for the fire truck to be at Beau's funeral and in the funeral procession.  Firemen Jake, Tony, Bryant and one other special fireman will be Beau's pallbearers.  Grand-dad Miller went to the river today and got his golf cart (Beau loves golf carts) and it will be taken the the grave site.  His little casket will be placed on the back of the golf cart and Mommy and Daddy will take him on one more ride before the graveside service.  What an awesome day he will have.  Mathew 18:4 Therefore, whoever humbles himself like this child is the greatest in the kingdom of heaven.  Please say a special prayer for Jennifer and Parham tonight.  Please pray they will rest well tonight and God's grace and mercy will continue to sustain them in the days ahead.  God Bless!!
Love, Grammy

Isaiah 40:31 but those who hope in the Lord will renew their strength.  They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.  Beau, our precious little warrior received his angel wings today at 6 pm.  His momma and daddy were with him all afternoon holding him close in their arms.  All his grandparents, aunts, uncles, cousins and some friends were close by. While we are sad that our little warrior is gone we rejoice knowing that he is now with Jesus in heaven.  Over this past year Beau has shown us all what strength, courage and determination is.  He has touched so many people and their lives will never be the same.  Yesterday and today, there has been a steady stream of doctors, nurses, respiratory therapists, caregivers, housekeepers, friends and family coming to see Beau, Jennifer and Parham.  His doctors, one of his residents and three of his nurses stayed with him all afternoon making sure he was comfortable until his angels took him home to be with Jesus.  Mommy and daddy had their special time with him and then they let Kayla have her time with him to tell him goodbye.  For the next few hours his family and friends surrounded him with love and said their goodbyes. Beau is at peace now.  He is running and playing in heaven and we'll see him again one day.  Beau had a very special day today.  As you read in my early update he had a special visit from fireman Jake and his buddies.  Fireman Jake came back later and brought Beau his own fireman's hat.  Not a play hat a REAL fireman's hat with his name on it.  He also received a tshirt.  So not only is Beau God's newest angel his is an honorary fireman.  I told fireman Jake how much all he had done had meant to Beau and his family and he told me Beau had greatly impacted his life - forever.  All day today I kept hearing this same thing, "Beau has made such a difference in my life".  The Childlife staff gave him a Christmas party today.  Santa made a special trip to see Beau and read him "Twas the Night Before Christmas"  They had a Christmas tree and lots of special elfs were there to help.  Beau received so many nice Christmas gifts and he even let momma and daddy open them for him.  He would say daddy open that or momma that one. Of course, once they were all open he had to have them all in the wagon with him.  He wanted to ride so he and daddy took a few trips around the nurses station and headed back to his room.  Beau had the most perfect day today.  A day filled with wonderful memories. He had his hero come riding up on the hooker and ladder truck - right up to his window on the 2nd floor and they waved at each other.  Then Santa came, read him a story and we got to have Christmas with him.  He had spent the day before and today with his family saying his goodbyes and now he was ready to go home with Jesus.  He spent the next few hours with his momma and daddy then his angels took him home.  What a blessing today has been!!  There are no words to express how I feel right now. We all loved him so very much and he will forever be with us in our hearts and the wonderful memories that we have. Thank you all so much for your prayers, love and support.  I will post the arrangements tomorrow as soon as I know what they are.  Please continue to keep Jennifer and Parham in your prayers over the next few weeks.  They too have shown us all what courage, strength and faith are.   God Bless you all!!!
Love, Grammy

UPDATE 11 pm - The family left about 9:30 tonight to give Jennifer, Parham and Beau their time alone.  The wonderful nurses put two beds together so Mommy, Daddy and Beau could snuggle and cuddle tonight.  They have been keeping him comfortable and he has rested off and on today.  He has been alert at times and would take sips of his "coca".  Beau has been surround with family, many friends and his three doctors, nurses, residents, and other caregivers and staff of 2West today.  His nurses off duty came in to see him as well as Jennifer and Parham's co-workers.  He and Kayla had sometime together today with just the two of them to say their good byes.  Kayla told him it was ok to go to heaven and get his wings and help God bring the rain and sunshine. Tonight right after they got him settled in the bed and we were getting ready to leave my sister and I saw him smiling and he started talking.  We couldn't understand what he was saying but I know it was his angels talking to him.  I whispered in his ear and told him it was his angels and it was ok to go with them when he was ready to go.  Please continue to pray for Jennifer and Parham and that God will give them the grace to get thru the next few days.  Thanks to David Vaughn (Parham's boss) and his office manager Debbie for bringing pizza for lunch today.  Fireman Jake and his wife brought subs in for dinner tonight. There are so many people to say thank you to. So I will just end by saying thanks so much for all your prayers, love and support over the past year.  We love you all so much.  God Bless!! Love, Grammy

It is with a heavy heart that I come to you today.  Our brave little warrior has fought hard this past year and with such determination and bravey but his little body is getting tired and he is almost ready to go home to Jesus.  His little kidney is failing and his time is short.  His family is surrounding him with love.  All his nurses, doctors, and other staff of 2 West as well as Jennifer and Parhams co-workers are with them this afternoon.  We just had a baptism service for him.  Please keep his family in your prayers today.  I will update later tonight.  God Bless and we love you!!
Love Grammy

Good afternoon!!  Beau's doing ok today.  Jennifer said he rested ok last night.  He slept so much yesterday she thinks he might have his days and nights mixed up.  He woke up during the night but was only sick once.  He was talking this morning and wanted to ride in the wagon so he must be feeling better.  He received his chemo around the middle of the day today.  Jen called and they were moving to his favorite room at the end of the hall.  It's bigger and brighter and he has a good view from the window.  He can see the parking lot and Stantonsburg Rd. so he can watch everything going on outside.  Mommy, daddy and Beau planned a lazy afternoon today.  He finishes up his two chemo treatments tomorrow.  We will find out if he goes home for a couple of days or stays put.  He is due to start the next five days of chemo on Thanksgiving Day but they might decided to wait until Friday.  Psalm 18:2 The Lord is my rock, my fortress and my deliverer; my God is my rock, in whom I take refuge.  He is my shield and the horn of my salvation, my stronghold.  We have so much to be thankful for this Thanksgiving.  The Lord has seen us thru this last year and will continue to walk with us every step of the way. He has been our rock, our shield, our strength and has carried us when we couldn't take another step.  We thank him and praise him for all he has done in all our lives and especially in our little warrior's life.  We life up Beau to God and ask his blessings on him today.  Please continue to storm the heavens with the prayer that this round of chemo is killing the tumor and disease in his lymph nodes even as I write this.  Pray that he continues to tolerate it and that he can rest and get sleep so his little body can heal.  We pray for continued grace and mercy for Jennifer and Parham to help them meet each day and what it brings.  We thank each and every one of you for continuing to pray for our little warrior and his family.  We pray blessings for each of you.  May God Bless!!
Love, Grammy

Good morning all!  Sorry I didn't get the update posted last night.  Beau had a good Thursday.  He seemed to feel better all day than he has.  He even went riding in the wagon around 2 West for awhile.  He and mommy loves Hannah Montana and they were listening to her music.  As usuall he loves to play the "air guitar" while listening. He told mommy he wanted a guitar.  Mommy called Grammy and asked her to stop at "Malmart" to see about one.  While we were talking, he said he wanted a fishing pole.  So I made a stop at "Malmart" and found a little guitar that plays all kinds of music and sounds and a Lil Tike Fishin pole.  Kayla and I took it to him.  Jen put on the music and he sat there playing away and then played with his fishing pole.  He started his chemo yesterday afternoon and did well with it.  I haven't talked to them this morning to see how he did last night but will be on my way over shortly. He wanted his door open again yesterday afternoon so we know he's feeling better because he is more sociable.  2 Corinthians:3-4 Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles....  No matter what is going on or what our troubles are God is always there to comfort us.  God has been with us since this all started a year ago and he will continue to be with us.  We must continue to draw our strength from him.  Please continue to storm the heavens with prayers that this protocol of drugs will shrink the tumor, and kill the disease in the lymph nodes.  Pray that Beau will be able to tolerate the chemo.  His eye was still a little puffy yesterday so please pray his eye will completely heal up  now.  And, please continue to pray for God's grace, mercy and strength for Parham and Jennifer.  And, as always, we thank you all so very much for all your prayers, love and concern not only for Beau, mommy, and daddy but for all Beau's family.  We love you all.   God Bless!
Love, Grammy

Beau's eye is much better today.  The swelling is down a lot and he could actually see out of it this morning.  He is still not feeling well and continues to have some fever, aches and pains.  He didn't rest well last night because of the fever, aches, and pain so they started him on tylenol and he has continued to receive it through out today.  Dr. Grossi plans to run a few tests tomorrow and he is scheduled to start chemo.  He has spent the day resting and sleeping.  He has wanted mommy right with him so Jen has spent the day beside him in the bed.  Mark 9:23  "Everything is possible for him who believes."    We believe God is in control and God is taking care of Beau.  We must continue to trust and believe in God.  All things are possible with God.  A quote from Mrs. Charles Cowman - Keep on believing God's Word; never be moved away from it by what you see or feel, and thus as you stand steady, enlarged power and experience is being developed.  The fact of looking at the apparent contradiction as to God's word and being unmoved from your position of faith make you stronger on every other line.  Please pray for good results from Beau's tests tomorrow.  We also pray he will have a restful night tonight.  Please continue to pray that God's healing power is flowing through Beau's body and that the chemo will really kick some neuroblastoma "butt" this time.  Pray for grace and mercy for Jennifer and Parham and that they have a restful night tonight.  We thank you Lord for all that you are doing in Beau's life.  We thank you for always being there, for always taking care of us and for always loving us.  We love you and praise you our God, our Adonai.  God Bless!!
Love, Grammy

Good morning all!  Sorry I didn't update last night but Grammy was a little under the weather and went to bed early.  Beau has his CT scan yesterday.  The tumor had not shrunk but it had not grown so the report was still good.  There was no evidence of any new growth and the puffiness in his eye is an infection.  The doctor gave him drops for that.  Dr. Grossi sent the information to Dr. Gilman in Chapel Hill and they are waiting to see what he wants to do next.  We aren't sure if he will stay here for one more round or go on to UNC.  Dr. Grossi told Jen they actually scanned a little earlier then he had planned on because of the puffiness above his eye. They had planned to do the scan next week.  He said normally when you start a new protocol of chemo you receive two rounds before you do a scan.  Beau continues to play and eat well.  He is a totally different child than he was a few weeks ago.  Beau received a very special surprised yesterday.  A very sweet lady who wishes to remain anonymous gave Beau his own little motorized golf cart.  It is a single seater and has a set of golf clubs. Beau loves it.  He had to take it in the house with him yesterday.  She was shopping and saw it and felt lead to buy it for him.  All she wants are a few pictures of him with his new golf cart. Thank you so very much.  Worlds cannot express how much this means to Beau and his family.  Your love, compassion and thoughtfulness touches our hearts.  We will get pictures of him in it and post them on the web soon and I will send you copies as well = Beau's special angel.  Beau and mommy are going to chill at home today and get a few things done.  Luke 17:6  ..If you have faith as small as a mustard seed....  We continue to have faith that God will heal Beau.  He has been faithful to us and has shown us over and over again that he is in control.  There may be times when our faith is tested and we can't understand what is coming next but we must continue to trust in God.  Beau is his child, his little lamb and he loves him so much. There are so many people praying for Beau and have faith that God will heal him.  So many prayers going up daily on his behalf.  God's children are talking to him and he loves it.  Please continue to pray for Beau's good health in the days ahead until he has his next chemo so he can enjoy his time at home.  We pray God's healing power continues to flow thru Beau's body and the chemo continues to kill the tumor.  Pray the medicine quickly takes care of the infection in his eye.  We pray that God's hands are on Dr. Gilman and Dr. Grossi as they decide the next step to take in Beau's treatment. Thank you so much to everyone for the prayers, love and concern.  I know I say this all the time but they keep us going each day.  God Bless!!
Love, Grammy